Wednesday, February 20, 2013

Caring For the Caregiver

By Audrey Lintner

When your world turns upside down, you’d better learn to stand on your head. You get kinda busy when you’re the caretaker of a sick loved one. There are insurance forms to fill out, phone calls to make and to field, appointments to get to, and a bucket brigade of chicken soup and ice cream to requisition. Add in a four-year-old who can’t understand why Daddy spends all of his time sleeping, and you’re lucky if you can find time to breathe, let alone carve out some “me time.”

Even the best juggler will only try to keep things in the air for so long. Without a break, everything comes crashing down. Caregivers must think of themselves the same way.

Lots of us have a peculiar tendency to want to handle everything life throws at us, all by ourselves. Flat tire? Change it. Sink clogged? Plunge it. Husband diagnosed with cancer for the second time in less than a year? Deal with it.

And you do. You make the appointments, keep the house relatively livable, feed everyone able to tolerate solids, answer a thousand questions, and take it all one day at a time. Hopefully, there’s some bathing and teeth-brushing somewhere in there, but you get the idea.

At least once a day, you will hear, “Oh, be sure to take care of yourself, too!”

Try not to laugh, because that may be the best advice you will ever get. Physical hunger is an obvious and easy thing to resolve, but feeding the soul is a much more difficult and vital task. When you find that you’re not yourself, snapping at people or staring at the walls for ages, you are well into I Need A Break territory.

Remember all of those folks who said to “just call if you need anything?” Call them. Get someone to spouse-sit for a couple of hours while you take a nap or a long bath. Let your kitchen-savvy friend bring over a hot meal. Take your in-laws up on their offer to drive your loved one to his appointment so you can spend an hour in your favorite coffee shop. Each little break you take for yourself is like a “Get Out of Insanity Free” card, and will make your role as caregiver that much easier to fill.


My wise Auntie-by-choice Marty says that people should seek out little pieces of happiness, wherever they can find them. Lucky me, a lot of my pieces of happiness are friend-shaped.

How do you make time for yourself? How can you tell that a little "me time" is in order? Share your thoughts in the comment section, and have a peaceful day!

Photos courtesy of stock.xchng

39 comments:

  1. Audrey, I love how you can take a heavy topic and make light of it - your humor is contagious. I am right there with you when you say that setting aside some time for yourself is the best advice you'll ever get. Everyone needs to relax and take a break once in awhile, especially to recharge and ensure that their loved one will get 100% of them and not the grumpy one-word answers. Thank you for sharing!!

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  2. "Lucky me, a lot of my pieces of happiness are friend-shaped."
    Lucky you indeed Audrey. It's not always intuitive to appreciate our friends or to reach out to them. Kudos to you for finding your little bits of joy by connecting with others. Although I am not facing the tremendous challenges many folks are, I can really appreciate the difficulty in finding "me time" . I usually find it at the gym, and most recently, mid-day yoga class. Carving out that decadent hour helps reset my outlook for the rest of the day. -Sarah

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  3. I think it's so true what you said about taking people who have said they would help on their offers. It will help you yourself, it will help the ones you are caring for, it will help everyone else who has to deal with you, and it will help the person who offered. It's a chance for them to be kind and generous, and we can all take advantage of such chances as often as possible. And what lovely advice from your Auntie-by-choice!

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  4. Well done and well said. You do need to take care of yourself if you are to be at your best when helping out with the one for whom you are providing care. Taking time out can seem or feel selfish, but it is vital to stoke your own furnaces so that you can remain healthy enough to continue the care. A very smart Auntie you have there.

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  5. Somewhere along the way, women were wired to think they have to be everything and handle it all without shedding a tear. It isn't until we reach the end of our rope and scream that we get any attention. Why can't we grasp the knot of help? Instead we smile and say we are fine until it slips through our fingers. Thanks for the great thoughts Audrey!

    Wendy
    W.S.
    Gager on Writing

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  6. My heartfelt understanding goes out to you. I am one of those careed for for a loving and generous caregiver. You are apperciated!

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  7. It's hard when there is nothing you can "do" to solve a problem - well done!

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  8. That's wise advice, Audrey. Thank you.

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  9. SO true! When Mom was in the hospital and I took over full-time caregiving for Grandpa, I don't know what I would have done without family giving me free hours and even overnights. :)

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  11. Audrey…a beautiful description of how help really can help!

    How about a tool for those friends tentative about offering help? Please consider letting others do some of those errands and cooking, etc. by selecting a free online tool specifically designed to help provide caregivers a way to list their needs (privately) and for others to sign up for them on a planned, regular or occasional basis. You select who has access.

    One site is http://www.carecalendar.org/ and I am sure that there are many others.

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  12. My brothers and I took turns caretaking Mom and Dad, and also hired a caregiver. Not an easy time when both are ill.

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  13. Great advice! I'm not in this situation, but I've been in similar situations where others offered to help, but I never took them up on it. I should have. I'm very glad you are.

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  14. Recently while I was caring for my sister following her surgery, I found that taking a quick walk always rejuvenated me. She lives out in the country, as I do, and going out to see the rural beauty always raises my spirits. Not to mention how beneficial the exercise is.

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  15. I was once in a place where I was gravely ill, spent a short time in ICU, and when they released me to go home I did not know how on earth I would find the energy to take care of myself, let alone my two very young children (the youngest was 3 months old). I can not tell you how thankful I was to all who stepped in to help (many were new neighbors whom I hardly knew). Even when I did not have the energy to say so, it often moved me to tears when I had a clear moment to think about all that was being done. Please know that all you do is so appreciated by your husband and loved ones, even if they are not always able to express it. And please know that most people welcome an opportunity to help when they see how they can do so. Prayers to you and your family for a full recovery!

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  16. Audrey, this was such great advice. There was a time when my mom lived with me when she wasn't well and I often felt like I wasn't remembering to take care of myself. I had good friends who reminded me of the excellent advice you gave us here. It was so hard to call people who tell you that they'll do anything for you and I found it helped to make a list and rotate who I was calling. That sounded silly at the time but it sure came in handy at times.

    The best way I made time for myself was a coffee date with myself. I would carve out time each weekend and tell my family that I needed to write so I packed up my laptop and headed out. It felt decadent, but by the time I was done it felt refreshing and I could come home and devote time to caring for my mother. Thank you for all these reminders and for the advice for people who haven't had to deal with this. Even if they think they don't need it now, they may sometime.

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  17. I've read this post twice and don't know how to respond. It hits too close to home on several levels. So, let me just say this . . . My thoughts and prayers are with you and your family, Audrey. Although distance prevents me from helping you directly, know that we are kindred spirits, and I am sending you strength, grace, perseverance, and empathy.

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